Keywords
Participatory Design, Design for Health
Keywords
Participatory Design, Design for Health
Partners | Funders
Public Health England, National Aids Trust, Microsoft Research Cambridge, YOTI, Terrence Higgins Trust, The HIV Treatment, Homerton University Hospital NHS Foundation Trust Advocates Network, Middlesex University; UK-CAB, Thrive, INTEROPen, Newcastle upon Tyne Hospitals NHS Foundation Trust, Women in Europe, Central Asian Regions plus (WECARe+) Network
Funded by the Engineering and Physical Sciences Research Council (EPSRC) (Grant Reference EP/R033900/1,
EP/R033900/2)
Publications
Claisse, C., Kasadha, B., & Durrant, A. C. (2024). Perspectives of healthcare professionals and people living with HIV in dialogue: on information sharing to improve communication at the consultation. AIDS Care, 36(sup1), 6–14. https://doi.org/10.1080/09540121.2023.2282034
Brown, R., Sillence, E., Coventry, L., Branley-Bell, D., Murphy-Morgan, C., & Durrant, A. C. (2023). Health stigma on Twitter: investigating the prevalence and type of stigma communication in tweets about different conditions and disorders. Frontiers in Communication, 8, 1264373. https://doi.org/10.3389/fcomm.2023.1264373
Bennett, S., Claisse, C., Luger, E., & Durrant, A. C. (2023). Unpicking Epistemic Injustices in Digital Health: On the Implications of Designing Data-Driven Technologies for the Management of Long-Term Conditions. Proceedings of the 2023 AAAI/ACM Conference on AI, Ethics, and Society, 322–332. https://doi.org/10.1145/3600211.3604684
Project Summary
The INTUIT (Interaction Design for Trusted Sharing of Personal Health Data to Live Well with HIV) project aimed to investigate how people with HIV may use their personal data to support the management of their condition in daily life, for living and ageing well.
INTUIT was funded by the EPSRC and brought together experts in HIV Medicine, Public Health, Human Computer Interaction, Design, Health Psychology, Health Informatics and Applied Ethics to:
Envision, develop and evaluate trusted new tools that empower individuals to use personal data for self-managing their condition;
Understand what it means to share these data with particular others, including healthcare providers, communities, and private organisations;
Identify ethical issues associated with challenges of Trust, Identity, Privacy and Security (TIPS) for managing stigma and well-being.
INTUIT
Interaction Design for Trusted Sharing of Personal Health Data to Live Well with HIV
